Posts Tagged ‘Caregiver’s’

Alzheimer’s Disease: a Caregiver’s Overview


Taking care of a person with Alzheimer’s is one of the most challenging jobs in the world. Care for a person suffering from Alzheimer’s disease involves taking care of all his physical and emotional needs.

Educate yourself about all the aspects of Alzheimer’s. Knowing what’s happening and why, can make it easier to cope. You will also know what to expect as the disease progresses. Understand the changes that the person will go through. Discuss them with family and close friends so that they are prepared.

Dealing with an AD patient on a day-to-day basis can be highly demanding. The person with AD can project different behaviors on different days. Draw up a schedule and try your best to stick to it. But always maintain a flexible state of mind and adapt to any changes that come your way.

A person with Alzheimer’s will experience many changes in his personality as the disease progresses. He will be stubborn, irritable, insecure, irrational, and paranoid. He may also be unable to mange even the simplest physical tasks like holding a fork or buttoning his shirt. This can be trying for the caregiver as well as the person with Alzheimer’s disease. Remember to approach each situation with tact and sensitivity; he is still the person you have always loved and it is nobody’s fault that he is experiencing these changes.

Persons with AD are usually restless and get bored easily. Involving the AD patient in daily activities and time with family is very important. Always treat him with respect, never put him in a situation that tramps his dignity or makes him feel inadequate. As language skills degenerate, it will not be easy for the person with Alzheimer’s disease to communicate. Pay attention to his body language and try anticipating his needs.

Looking after a loved one with Alzheimer’s is a 24/7 job that makes staggering demands on your time and understanding. Maintaining your equilibrium is crucial to the smooth functioning of day-to-day life. This is not always easy, no matter how much you love the person you’re taking care of. Accept help from time to time and don’t feel guilty about it.

Good health is not a struggle, nor it is an extraordinary feat. Healthy living is about understanding what your body needs and what is good for it. Re-discover good health in a simple way with Tania Hackner and make good health a way of living!.For more information and advice on General health please visit us at What You Need to Know.

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For the last 20 years, I have helped clients plan for their “golden years”, including how they will address the issues of aging and remaining independent. And now I am personally experiencing it myself; I am the Designated Daughter with my own parents. Because my parents and I had “the important conversations” and did the proper planning, I was prepared when I received that ‘Call in the Night’. Part of creating the life of your dreams is making sure you address all the “what ifs” in your life. Skipping this step could create unpleasant complications that might be avoided. Our parents and loved ones are living longer and we need to know how this may affect our lives and be prepared with a plan. Take a look at these statistics:

When Social Security, Medicare & Medicaid were designed, life expectancy was 63. Our fastest growing population is age 85 plus and 50% may have some form of      Alzheimer’s. By 2030, 70 million people in the US, or 1-in-5 people, will be age 65. Another 1 million people will be 100 years old. The need for healthcare and related services is exploding!

According to USA Today:

60% of US caregivers are female 66% are married or living with a partner 45 is the average age of US caregivers 77 is the average age of the care recipient 41% of caregivers have children under the age of 18 at home 52% of caregivers are employed full time

Learn how to be prepared, how to talk to your parents or loved ones, what you and they should do to make sure your lives continue to run smoothly and how to avoid costly mistakes.

Step One ~ Get Organized!

You’ll need to gather together the following: One filing cabinet, complete with hanging file and manila folders; a copy of all important documents; a large three-ring binder with big tab dividers; and a colored marker.

Use the binder to store copies of important documents. Label the document title on the tab divider. This will come in handy should you need to transport documents. Using your marker, write on the back of each document where the original is stored (i.e. Will stored in safe deposit box and son John has the key.) Have a section on beneficiaries that lists all documents with appointed beneficiaries. Always keep this section current.

Next, organize your file cabinet. If you don’t want to store original documents in your file cabinet, note the original’s location in the appropriate file. Create the following titles for your hanging files and store items under each category in labeled manila folders.

Important Information

Location of safe deposit box and key Passwords for debit card, online accounts, computer, and voicemail Armed forces documents Birth and marriage certificates Names and phone numbers of your attorney, CPA, financial planner, broker, and insurance agents Copy of tax returns and winter/summer tax assessments Copy of Social Security Estimate Statement

Legal Planning

Copy of will and trusts Copy of life and unemployment insurance policies Durable Power of Attorney (DPOA) documents Prepaid funeral and burial arrangements/plan for pet relocation and expenses.

Banking/Investments

Copy of each credit card with contact phone number Divide out by financial institution a copy of bank statements, brokerage accounts, annuities, IRA’s, stock/bond certificates, and dividend reinvestment plans (DRIP) Copy of retirement plans and investment real estate documents Copy of “Survivor’s” Pension Benefit (what will surviving spouse receive after the retiree dies?)

Medical

Name and phone numbers of physicians, dentist, and pharmacy (list prescriptions) Copy of medical insurance card and benefits guidebook Long term care and disability insurance policies Patient Advocate Designation document. Give primary care physician a copy Copy of Medicare card and account number

Household

Copy of home deed, homeowners insurance (umbrella policies) Copy of mortgage and home equity loan statements Copy of auto title, loan/lease, and insurance documents Copy of statements for gas, electric, water, waste management, telephones, etc. Home maintenance file to include repair receipts, phone number of repairmen, warrantees, and appliance insurance.

Step Two ~ Discovery

Your documentation is organized. Breathe a sigh of relief! Next, you’ll need to have a series of important conversations with your loved one and other family members including:

What do they think they want for their long term care? What are their needs as they are aging and who can provide it? How do they want to handle their money and property as their lifestyle changes? What kind of legacy do they want to create for themselves?

All of this may take a number of conversations. Try asking if you can talk about these things in general terms because you are doing your own future planning for college savings or retirement. Ask for their help to assess their situation and welcome their input on solutions. Role play a bit… Try talking about how they would feel if they had to make these decisions for you instead? Ask what their friends are doing about these types of things? Patience is key here! The most important thing is to really take a look with them at their values, lifestyle and spiritual picture as they ultimately have to “own” the solutions.

Next, you’re ready to select the individuals you want on the caregiving team. Include any that apply: family members, doctors, home care specialist, attorney, certified elder law specialists, insurance agents, brokers, CPA, caregivers, certified financial planner, therapist, etc. Many of these professionals are trained to help families deal with health, financial, and social issues in a holistic way.

Step Three ~ Create a Financial Plan

Sit down with a certified financial planner and develop a financial plan that addresses the following:

Financial Position:

Create a cash flow statement which breaks down income and expenses. Determine your net worth by listing assets and liabilities.

Income Taxes:

Review tax situation for capital gains/losses with real estate or stocks. Discuss inherited IRA status vs. pension /profit sharing plans.

Investments:

Analyze investments for quality, safety, income needs, tax situation, etc. Are investments manageable, properly diversified, or all over the place?

Retirement:

Establish amount of assets necessary to meet your lifetime income needs. Project retirement income needs in several situations (i.e. home care/assisted living, utilizing long-term care insurance benefits if applicable.

Estate:

Review documents and analyze current estate plan. Verify beneficiaries on life insurance, annuities, retirement plans, & 401K Decide what you need and desire for financial independence. How much will you leave for a family legacy? How will you allocate your social legacy regarding gift and tax?

Protection:

Assess cash flow projections and alternate scenarios regarding disability, long-term care, and premature death.

Step Four ~ Meet with Your Team and Create a Plan

Now that you’ve got everything in place, sit down with your caregiving team members and develop a plan of action that satisfies your loved ones’ goals, values, and objectives. The final product should enable you all to maintain your dignity, lifestyle, and assets. In addition, the plan should be clear, concise, easy to manage, and tax efficient. It should also acknowledge the needs of whoever becomes the main caregiver.

The benefits of early planning are numerous, including:

clarifying your loved ones wishes identifying the best possible resources minimizing confusion and stress during times of crisis increasing overall peace of mind

The end result…everyone involved is able to sleep at night knowing all concerns have been addressed and that a team and a plan is in place to accommodate all those “what ifs.”

Source: Working with Seniors Health, Financial and Social Issues, 2003

Certified Financial Planner and Vision Coach, Katana Abbott is the Co-founder of Smart Women’s Coaching®. She has presented her Designated Daughter® Panel Discussion and Workshop various organizations, including the Federal Reserve’s Money Smart Week and the Area Agency on Aging 1B. For more information visit her website at www.DesignatedDaughter.com.com or email her at katana@DesignatedDaughter.com

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Caring for Aged Parents? Beware Caregiver’s Stress

If so, you are part of one fourth of American families who are caring for an older family member, an adult child with disabilities, or a friend. According to the AARP, you are one of more than 22.4 million Americans who are now caregivers to older adults, a number that has tripled in the last 10 years alone. The average amount of time these Americans spend on caregiving is about 20 hours per week with many of these hours spent in physically demanding work. With the life spans raising over the past century from 49 -77, some children are actually caring for invalid parents 20 years, longer than the parents spent raising them.

I would like to ask you a question? How is your own personal health? One third of caregivers describe their personal health as fair to poor, and many worry that they won’t outlive the person for whom they are caring. As you and other caregivers struggle to balance caregiving with other responsibilities, including full-time jobs and caring for children, constant stress can lead to “burnout” and health problems. You may feel guilty, frustrated, and angry from time to time, suffer from depression, and become ill easily yourself. Caring for even the most beloved parents can seem like a burden when your own health collapses from endless hours of caring for their needs.

For example, caring for a parent with Alzheimer’s disease (AD) or other kinds of dementia at home can be overwhelming. The caregiver must cope with declining abilities and difficult behaviors that affect even basic activities of daily living and often become hard to manage for both the care receiver and the caregiver. As the disease worsens, the care receiver usually needs 24-hour care.

In addition to the constant care required, caregivers of parents with this type of problem also suffer from the emotional pain of losing communication with parents who no longer recognize them. To sustain this, and other types of prolonged stress and care, you need to call upon other family members, friends, and neighbors for help. If other caregivers aren’t available to fill in, respite care services may be available in the community to help you. Respite care can be a good way for you to get a break (respite) from constant caregiving.

Some caregivers are still raising their own children and feel torn between the needs of their children and the needs of their parents. In fact, in this day of small families, many Americans may have more parents than children. They also feel torn between their own needs for work, vacations, privacy, hobbies, or friends and feelings of guilt, resentment, or even depression or martyrdom. Both aging parents and caregiver children lose independence and privacy. Even the most congenial relationships can suffer from these loses.

Here are some recommendations to help you take care of your own health:

• Eat a healthy diet and drink plenty of water. Avoid sugars, fats, and salt. Include plenty of fresh fruits and vegetables. Follow the guidelines of the government’s food pyramid for proper amounts and food types to include in your daily menu. Take a good multivitamin for extra protection.

• Get plenty of rest and sleep, even if you have to enlist help to care for your parents while you rest. Spend some time unwinding and relaxing during the day as well.

• Get regular, healthy exercise at least three days a week. Regular exercise not only reduces stress and improves health, but also produces endorphins, which add to a good feeling mood.

• Keep your own health care up to date, including yearly checkups. If you experience negative feelings, get counseling from doctor or therapist, or share your feelings with good friends.

• Speaking of friends, keep your social life active in order to stay connected with your community and to give an outlet for stress. Seek comfort and support in your faith-based group as well.

• Remember you are not alone. Seek support groups for caregivers, especially if you are caring for a loved one with a disease. Look online for government or state supported groups and help departments. Find community support groups.

• Make arrangements for your own vacations and retreats, for regrouping and refreshing yourself, your spouse, and your own children. Remember, you are not the only one affected by your live-in parent situation. Your entire family experiences changes and stresses along with you. Arrange for someone to stay with your parent and spend some time as a family away from home and those extra responsibilities.

• Remind yourself of the care that your parent lavished on you as a child and how you felt about that parent then. Often, we get so busy that we forget how much we really love our parents, especially in the throes of caring for them. Try to revisit happier days with them and remind both them and yourself of those times. Bring out family pictures and relive happy days together.

If you are a caregiver, remember to care for your own health as well as that of your loved one. Seek comfort, help, time to refresh yourself, and regular exercise to ensure that you will remain able to give that care and still maintain your personal wellness.

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